UPDATE, Sunday, February 12 -- I'm just going to let my niece's words provide today's update. Thank you to everyone for your prayers and positive thoughts. Please keep them in your thoughts and prayers as they settle in at home and Ben continues to heal.
I have been teary all day today because this is it. This is THE DAY! One of our nurses has said to me the last couple days "today just isn't Ben's day." Today is finally Ben's day!!!
15 days ago we arrived here at Children's Hospital Colorado, having no idea what we were in for. My biggest fear when we arrived was going home with a child in pain and how to console him until he got better. Little did I know the ride we were in for!
Today, after 15 days here in the NICU..., we get to go home. We are excited, terrified and grateful. So, so grateful. But for the first time in two weeks I'm crying, and it's tears of joy.
Please continue to keep us in your thoughts and prayers as we navigate these new waters. We couldn't have gotten this far without all of you.
~ ~ ~ ~
UPDATE, Wednesday, February 8 -- I told my niece, Jessica, that if I'd had some candles to blow out on my birthday, this is the sort of news I'd have wished to hear. Thanks to everyone for your continued prayers and positive thoughts! From Jessica, posted on FB:
MRI was a success today thanks to our pal Mr. Versed. Good news is that clot is smaller and there is nothing new on the images. We will continue to track the clot and bleed over the upcoming months in the clinic here but we are moving in the right direction!
There is talk of us going home soon! Jeff and I are beginning prep with everyone here. We have been inundated with visits from the various medical teams to prep us for the transition back home and the ...ongoing care we will receive.
I have been trying to finagle a nurse to come live in our basement, give shots and watch Ben for the time being (or until he is 30-ish) but haven't been successful so far. Sigh.
We can't wait to all be home together, but life on the "outside" is both scary and exciting!
~ ~ ~ ~ ~
UPDATE, Saturday, February 4 -- Just sharing a picture of my niece, Jessica, and Benjamin. I call this one 'pure joy on a mother's face'!!! The ventilator is gone! The picture was taken almost exactly one week to the minute of the fall Ben and his father took. Thank you EVERYONE for your prayers and good thoughts. Please keep them coming. While Ben's progress is phenomenal (in the words of the neurologist), there's still a ways to go.
UPDATE Friday, February 3 -- just a quick one. They determined today that Benjamin still needs the ventilator for a bit longer but he's been almost totally weaned off the medication to prevent seizures and sedate him. He's been awake, alert and responsive to their voices. Keep praying and sending positive thoughts. The journey is still a long one! THANK YOU!
I've been a Valley Dweller for about 15 years (if you count my early lurking) and so often I've heard people talk about the positive power of the Valley's prayers and thoughts. There were times when I thought I could use that positive power but I've never asked for it. But now, I'm hoping it can do some good for my very tiny great-nephew, Benjamin James Tyler. Our family was blessed when my niece, Jessica, and her husband, Jeff, became second-time parents on January 14 when Ben was born. His "big" brother, Will, was 2 years old in September. On Saturday, January 28, Benjamin and his father took a fall down some stairs and Benjamin is in the NICU at Children's Hospital Colorado (Denver area) with both bleeding and a blood clot on his brain. He's experienced seizures, is on a ventilator, and has been through a couple MRIs. The second MRI (two days ago) showed additional injuries that couldn't be seen on the first MRI. I'm sharing (below) today's report from my niece, Jessica. Jeff, dislocated his shoulder in the fall and will be starting PT next week. Please keep them all ... Jess, Jeff, Will and Ben ... in your thoughts and prayers. Benjamin is proving to be a strong little guy but he's still so tiny and can use all the positive help he can get.
Today's update from Jessica:
Today is a quiet but anxious day for Mr. Ben. Or maybe just for his parents ). Last night, we began the process of weaning him off one of his seizure meds that is also keeping him sedated.
As we drop the first med, he will begin to become more aware & responsive, and our hope is that we will be able to remove his ventilator in the next day or two. In addition to the medical steps he is making, I am so hoping that tomorrow will be the day I get to hold him again!!
It's e...xciting to watch these steps & progress, but also scary- we have lowered his ventilator a bit so he is doing more work on his own, so we watch to make sure he is ready for that and able to take on more of the work of breathing. Then, we are lowering his seizure med that keeps him sedated, which means he gets more active. He is pretty darn strong for a newbie and has already pulled his breathing tube out once while here, so we have to keep a close eye to make sure that he doesn't do it again!
The other two Tyler boys are doing well. Jeff is going to be able to address his shoulder injury with PT only, no surgery; and William has been a total trooper. He is with his friends at school each day, & Grandma and Papa are helping Jeff hold down the fort at night. We have honestly been blessed with two incredible sons.